The devices that a physiotherapist has available, often have a negative result on my muscles if I overload the muscles.
Performing the movements untaxed is experienced positively.
The spasticity and fatigue that result from stress increase as the effort increases. I lack the coordination to properly carry out the movements on the devices where more than 1 operation must be performed, so that I quickly get tired. Through all that I am tired very quickly. Doing exercises in the water (aqua jogging) looks easy, but when I step out of the warm swimming pool water, my muscles block. There for heat (water) is needed to unblock my muscles. When the stifness rise through the inconvenience of the muscular disease, I can always back to my physiotherapeutic which induce my muscles till a better comfort. Doing exercises in the water (aqua jogging) looks easy, but when I step out of the warm pool water, my muscles stiffen up. Then I need more heat (water) to get the stiffness out of my muscles. I am unable to swim. The signals sent from my brain to make my legs move, are not received properly by the muscles. The stretching exercises and massage losen up the muscles. I have to do the stretching exercises daily and I can do them almost completely on my own. I also have to work out on a hometrainer, twice a day - 10 minutes per session, putting as little strain as possible on my muscles and joints. This is needed to stimulate the bloodcirculation in my legs and preventing fluid getting in my legs. The saddle has to be adjusted at the right position so that I can easily get on the hometrainer without having to lift up my legs too high.
See the video below of home exercises by PLS patient Jos.
A physiotherapist examines and treats complaints during movement. This mainly concerns complaints and limitations in daily life actions. The physical therapist also monitors lung function and instructs breathing and coughing techniques.
The physiotherapy focuses on movement disorders, such as walking, exercising, lifting, getting up from the floor or out of bed, but also breathing and coughing. In general, the PLS physiotherapist guides patients when problems arise with or while moving in everyday life. This can be different for every PLS patient. It depends on the degree and the location of loss of strength, the type of activities the PLS patient performs and the way someone interacts with his or her complaints. The physiotherapist strives to maintain quality of life. What the treatment looks like exactly, depends on the request for help by the PLS patient.
Information and advice on maintaining physical fitness and strength and preventing too much fatigue.
Examination of pain complaints and physical limitations.
Analysis of the sitting posture and possibly head support in conjunction with occupational therapy.
Information and advice in case of problems with walking, the use of walking aids (such as a walker) and orthoses (such as splint support for a flaccid foot).
Information and advice in case of problems with the transfers (such as getting up and sitting down, getting in and out of bed) and also instructing the caregivers.
Information and instruction of breathing and coughing techniques, sometimes in collaboration with speech therapy.
Information transfer and collaboration with the other primary care providers where the PLS patient is being treated.